I am recently undergoing diagnosis and soon treatment for a recurrence after 18 years. There is not much literature out there because we are about 2% of the BC population. In 1994 I had 4mm invasive DCIS with no nodes. I only had surgery, no radiation, no chemo. However I now have a 3 inch x 1 1/2 inch tumor under my left arm that presents as breast cancer, but there is no breast tissue there due to masectomy. Unfortunately it has spread to a 1 cm tumor on my liver and a 1cm tumor on my spine. I think the first line of treatment will be radiation, and I am going to seek proton radiation therapy out of state because of the close proximity to my heart. Then I will be treated as chronic disease for chemo. I did not find it myself on self exam, it was hidden deep in my armpit. My regular exam doc found it.