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I am wondering if anyone has had persistent fatigue after breast cancer, radiation and taking Tamoxifen 20 mg? I am 3 years out and have to nap every day! I sometimes feel like the radiation destroyed me!

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Étude du cancer du sein plus de 5 ans
 
  • Buster OBuster Profile
    anonymous
    Learning About Breast Cancer
    7 month survivor, radiation, no chemo, taking arimidex. Fatigue has been the worse side effect.
    plus de 5 ans Signal
    • VIVIANE GRANT Profile
      anonymous
      Learning About Breast Cancer

      I also am a 7 month survivor, chemo was awful, and now it seems that every boon hurts, but the radiation keeps me so tirred all the time. I whent back to work and after 12 hours I am so tirred that I sometimes think I can not make it to the hous....

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      I also am a 7 month survivor, chemo was awful, and now it seems that every boon hurts, but the radiation keeps me so tirred all the time. I whent back to work and after 12 hours I am so tirred that I sometimes think I can not make it to the hous. By 5 in the afternoon I have to take a nap, if I am home. Feel like I am 85 years old, I am not that old at all. I was daignosed with an invasive triple negative carsinoma.Hope they find a cure soon, for my daughters and al the women out there.

      plus de 3 ans Signal
    • Megan Carlin Profile
      anonymous
      Learning About Breast Cancer

      My bones hurt also. Feel like a little old woman but I am 36. I was advised to take calcium and vitamin D. I did not want to swallow more pills but my vitamin D level was about a third what it should have been... Just started this month. I hope it...

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      My bones hurt also. Feel like a little old woman but I am 36. I was advised to take calcium and vitamin D. I did not want to swallow more pills but my vitamin D level was about a third what it should have been... Just started this month. I hope it helps. What do you take for pain?

      plus de 3 ans Signal
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      this might sound counterintuitive, but try gentle exercise. Start very low and slow, and work your way up. You could start with walking and measure from one mail box to another for example, until you can master the whole loop you picked out. If...

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      this might sound counterintuitive, but try gentle exercise. Start very low and slow, and work your way up. You could start with walking and measure from one mail box to another for example, until you can master the whole loop you picked out. If you have Tai Chi or other gentle yoga, try that. Exercise gives you energy. It sounds like it should make you tired, but it is the opposite. Good luck. Remember the fountain of youth is exercise and diet.

      plus de 3 ans Signal
  • Kim Flackey Profile
    anonymous
    Stage 1 Patient
    I hear you! I go to bed at about 8 pm every night and am still exhausted when I get up. I do get out and exercise and I have heard that the more you exercise, the more energy you feel like you have. Do you think it's the chemo drugs? I am wondering if that's what it is? When you read about the exhaustion, you can't really wrap your head around it until you have it. Did your brain go, too? I feel like I have a hard time focusing and remembering, too, after radiation. God bless you and keep you safe!
    plus de 5 ans Signal
    • Cheryl Brown Profile
      anonymous
      Survivor since 2009

      Yes, I had my last chemo treatment Dec. 2009 and final radiation treatment Feb. 2010.
      Try vitamin B12. It has worked for me. As far as brain. Well I say Chemo brain. Since cancer treatment I am not able to remember a thing. I write...

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      Yes, I had my last chemo treatment Dec. 2009 and final radiation treatment Feb. 2010.
      Try vitamin B12. It has worked for me. As far as brain. Well I say Chemo brain. Since cancer treatment I am not able to remember a thing. I write everything down and sometimes it is difficult for me to focus. I was not like this prior to cancer treatment. I think its a side effect of all the chemicals used for the cancer treatment. But, we are blessed so we just have to be creative and think of way to supplement what we have lost. Good luck and may god continue to bless you.
      Sister Warrior from NC

      plus de 5 ans Signal
    • Kim Flackey Profile
      anonymous
      Stage 1 Patient

      Cheryl,
      Thank you so much for the advice. I will try this. Hope all is well on your end.
      God bless!
      Kim

      plus de 5 ans Signal
    • Elizabeth Dycus Profile
      anonymous
      Learning About Breast Cancer

      I have a question for you wonderful women. Did you loose your hair due to the radiation, like I have heard so many times before?

      plus de 5 ans Signal
    • Laura Zarowny Profile
      anonymous
      Learning About Breast Cancer

      I am a year and a half from finishing my radiation and lumpectomy and I do still feel tired a lot. I have gone to a naturopath though, who has really helped me. He put me on a yeast free, sugar free diet as well as certain supplements to detoxify...

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      I am a year and a half from finishing my radiation and lumpectomy and I do still feel tired a lot. I have gone to a naturopath though, who has really helped me. He put me on a yeast free, sugar free diet as well as certain supplements to detoxify my body from all the radiation. I dropped 30 lbs. as well as my energy did increase. Any literature I have read says that a healthy diet with lots of fresh fruits and veggies, plus exercise help a great deal in battling the fatigue AND recurrence! Hope this helps and blessings to you on your BC journey!

      presque 5 ans Signal
    • Wendy Lauber Kilbourne Profile
      anonymous
      Survivor since 2009

      I went through chemo, radiation and am taking the Tamoxifen, having finished 2 years ago and STILL get fatigued very easily. I too was told to exercise, exercise, exercise! It helps to keep the energy up. I think it's the Tamoxifen now. I told...

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      I went through chemo, radiation and am taking the Tamoxifen, having finished 2 years ago and STILL get fatigued very easily. I too was told to exercise, exercise, exercise! It helps to keep the energy up. I think it's the Tamoxifen now. I told my doctor it makes me feel like an old woman...I get bone aches and cramps, easily tired and weight gain!!

      presque 5 ans Signal
    • BS BLUM Profile
      anonymous
      Learning About Breast Cancer

      @ Laura Zarowny what supplements to detoxify from radiation

      presque 5 ans Signal
    • BS BLUM Profile
      anonymous
      Learning About Breast Cancer

      What kind of supplements to detox from radiation

      @ Laura Zarowny

      presque 5 ans Signal
    • Kim Flackey Profile
      anonymous
      Stage 1 Patient

      I take Mega Red and was told this was enough. Worried about putting too much in my body. Don't want those cancer cells to get too powerful. Exercise is definitely the best for the fatigue even though you would think it would make you more tired....

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      I take Mega Red and was told this was enough. Worried about putting too much in my body. Don't want those cancer cells to get too powerful. Exercise is definitely the best for the fatigue even though you would think it would make you more tired. Hang in there- each month gets better. And who doesn't feel better in the Spring? The season of new beginnings.

      presque 5 ans Signal
    • connie hass Profile
      anonymous
      Learning About Breast Cancer

      Well I finished 32 days straight of radiation april 22 and now in just my second month of tamoxfin. I still hitting the wall have way through the day . Seems like I choose between work 1/2 day and or excersise .... Afternoons napping! I want wy...

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      Well I finished 32 days straight of radiation april 22 and now in just my second month of tamoxfin. I still hitting the wall have way through the day . Seems like I choose between work 1/2 day and or excersise .... Afternoons napping! I want wy old self back!

      plus de 4 ans Signal
    • Ellen  Bolin Profile
      anonymous
      Learning About Breast Cancer

      Wow I thought I was the only one who finds it hard to concentrate and remember things. I keep losing words too that is so frustrating.

      environ 3 ans Signal
    • Ellen  Bolin Profile
      anonymous
      Learning About Breast Cancer

      I've been done with chemo for 4 years, but I just keep getting more and more tired.

      environ 3 ans Signal
    • Kim Flackey Profile
      anonymous
      Stage 1 Patient

      Ellen,
      Sorry to hear you are a member of the bc club, but what a great group of ladies that belong! Hope you have the support you need. Hang in there- you're almost to five years!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Congrats!!!!!!!!!!!!!! It has...

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      Ellen,
      Sorry to hear you are a member of the bc club, but what a great group of ladies that belong! Hope you have the support you need. Hang in there- you're almost to five years!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Congrats!!!!!!!!!!!!!! It has been 3+ years and I am still extremely tired. I exercise, watch my diet very closely, and still feel half-asleep most of the time. My memory is really bad. I suspect from the radiation since that's when it all started to blur. I have to write everything down now or will not remember. I do remember that my husband promised to take me on a cruise for my 5 years survival anniversary. That's if I don't divorce him in the meantime- he has a terrible habit of snacking on the croutons instead of using them on a salad :).
      Take care and feel better.
      Be blessed and be a blessing.
      Hugs to you- KIm

      environ 3 ans Signal
    • Ellen  Bolin Profile
      anonymous
      Learning About Breast Cancer

      Ellen

      Thanks, this is the second time I've bc first time in 04 then it came back in 08 stage 4 they said it was terminal but I'm still here and doing ok. Except for the tiredness I sleep all the time and my feet and legs hurt so bad. But I do...

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      Ellen

      Thanks, this is the second time I've bc first time in 04 then it came back in 08 stage 4 they said it was terminal but I'm still here and doing ok. Except for the tiredness I sleep all the time and my feet and legs hurt so bad. But I do have a great support system. I couldn't ask for better.

      environ 3 ans Signal
    • Ellen  Bolin Profile
      anonymous
      Learning About Breast Cancer

      Oh yeah my brain is permanently shut done. I can't remember anything. Plus I keep losing my words. But I still feel blessed. God bless you.

      environ 3 ans Signal
    • Kim Flackey Profile
      anonymous
      Stage 1 Patient

      Ellen-
      Hope you are doing well. So sorry to hear about the reoccurence. I am still tired three years out and I recently started a new job that requires a ton of memorizing! I have to take notes constantly. I made an apron to wear that has all my...

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      Ellen-
      Hope you are doing well. So sorry to hear about the reoccurence. I am still tired three years out and I recently started a new job that requires a ton of memorizing! I have to take notes constantly. I made an apron to wear that has all my tools and notes so that I always have them handy. It's hard to explain to the employer and it's not an excuse when you say you didn't remember; just a fact. They have been really good about understanding and allow me a lot more errors than I feel they would someone else.
      If you need anything from me let me know. Stay strong!
      Be blessed and be a blessing-
      Kim

      environ 3 ans Signal
    • Jeannette  Landphair Profile
      anonymous
      Learning About Breast Cancer

      Stage 3 inflammatory bc. I will be two years out this May. I had chemo, radiation, double mastectomy and I tested positive to the BRCA 1 test. I have been on anastrozole for almost a year. I know this drug is saving my life but it has caused me...

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      Stage 3 inflammatory bc. I will be two years out this May. I had chemo, radiation, double mastectomy and I tested positive to the BRCA 1 test. I have been on anastrozole for almost a year. I know this drug is saving my life but it has caused me fatigue, bone aches and overall moodiness. I wish I could get off this drug but I can't. I do take a nap at least 2-3 days a week. If I can't take a nap I am usually in bed by 9pm. I am hoping I continue to get stronger but honestly I am not. I do exercise but I still get tired.

      9 mois Signal
  • Lisa Bahus Profile
    anonymous
    Learning About Breast Cancer
    I am almost 2 years out, after stage 2 - triple positive. I underwent chemo, lumpectomy, and radiation. My oncologist told me that I will be on tamoxifen, 20mg, for 15 years. I am currently 43 years old. I have periods of extreme fatigue and the memory issue's seem to be daily. This is frustrating because people think that once the treatment's are over and the diagnosis is positive that all should be as it was pre-cancer. One could not understand unless you have gone through all the treatments and are taking tamoxifen everyday! God Bless all oncologists and researcher's that dedicate their whole life to this disease. To all going through breast cancer now, remain positive and pray. Everything will work out in time. Although, the fatigue is a bit frustrating still. TAMOXIFEN.
    environ 2 ans commentaires Signal
  • Ruth Sosa Profile
    anonymous
    Stage 1 Patient
    I have been suffering from fatigue also, I'm a year out. I had a lumpectomy, radiation and now on tamoxifen. I know it's tough but when I do have a bit of energy I try to get a little walk in. And it's especially important to exercise now because I've read that the hormones can put some weight on you. Just remember take it one day at a time, it will get better.
    environ 3 ans commentaires Signal
  • Kim Flackey Profile
    anonymous
    Stage 1 Patient
    Hard for the family to understand about the fatigue unless they have been through it, but it is very real. I used to work until midnight easy 6-7 days a week and was less tired. Now if I clean the house, I am ready to rest for awhile. It is getting better, though. I had kidney stones and then kidney surgery and then kidney stones again with that followed by the flu right after radiation, so I believe that set me back some. Fresh air is amazing! That does the most for me. Just getting out and walking. Especially is it's cooler outside. I take Tamoxifen and not sure if that contributes, but suspect it does. God bless!
    presque 5 ans Signal
    • patty royalty Profile
      anonymous
      Learning About Breast Cancer

      I feel the same way. On Tamoxofin and I am so worn out, that I can't even work a job. I also had kidney stones during the middle of my radiation. Must be a link!!

      environ un an Signal
    • Veronica Stadnicki Profile
      anonymous
      Survivor since 2013

      I was taken off Tamoxifen for 3 months, I've been off of it for almost 6 weeks and I have to say I feel better. I also don't feel the fatigue. I'm going to have to resume hormone blocker in May. I honestly don't want to start another drug, but I...

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      I was taken off Tamoxifen for 3 months, I've been off of it for almost 6 weeks and I have to say I feel better. I also don't feel the fatigue. I'm going to have to resume hormone blocker in May. I honestly don't want to start another drug, but I have 2 more years to complete treatment.

      9 mois Signal
  • patty royalty Profile
    anonymous
    Learning About Breast Cancer
    I am on tamoxofin and I am tired all the time. I already had fibromylgia before I got breast cancer, which made me feel tired. Went on three cancer pills, two that made me feel terrible. They switched me back to the first one (tamoxifin). But the fatigue, anxiety is so bad I can't work.
    environ un an Signal
    • Colleen Flannery Profile
      anonymous
      Learning About Breast Cancer

      Patty, I had fibromyalgia before this too and now ive been on tamoxifen since February this year and im constantly wiped out and weak. I have a lot of trouble working my job. i work from home most of the time now as going into the office wipes me...

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      Patty, I had fibromyalgia before this too and now ive been on tamoxifen since February this year and im constantly wiped out and weak. I have a lot of trouble working my job. i work from home most of the time now as going into the office wipes me out for a day or two. Not sure what to do anymore. Considering going on disability. Are you feeling better lately?

      environ un mois Signal
    • patty royalty Profile
      anonymous
      Learning About Breast Cancer

      No I'm not. Even went off my cancer pills to try to feel better and it's just like it's already there in my body making me feel bad with my fibro. It is draining the life from me. I feel I don't have much of a life

      environ un mois Signal
    • Colleen Flannery Profile
      anonymous
      Learning About Breast Cancer

      Patty, yes I feel the same way. I am not sure what to do. I need to work as I am single and have a house to pay for and need good insurance too. I have thought about going off this stuff for a while. How long have you been off of Tamoxifen?

      environ un mois Signal
  • Roseanna Ridgway Profile
    anonymous
    Learning About Breast Cancer
    I am tired all the time! 2 years out from radiation. I take tamoxifen too. I feel like I will never be the same as I was before treatment 😞
    7 mois Signal
    • patty royalty Profile
      anonymous
      Learning About Breast Cancer

      It stinks. I have been on them for two years. Decided to go off of them because I still don't have my disability. But after going off of them have been going through severe depression and anxiety, so I still can't work. I don't sleep 15 hours a...

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      It stinks. I have been on them for two years. Decided to go off of them because I still don't have my disability. But after going off of them have been going through severe depression and anxiety, so I still can't work. I don't sleep 15 hours a day now but I'm still tired all the time. Guess I'll go back them

      environ un mois Signal
  • Clara Cano Profile
    anonymous
    Survivor since 2008
    I'm there as well... Just over 3yrs out from treatment and taking Aromasin at the moment.... And I feel like I'm tired ALL THE TIME... I usually fight the urge to nap, but I'm thinking that may be a disservice... I get so happy when I don't feel exhausted
    plus de 5 ans commentaires Signal
  • patty royalty Profile
    anonymous
    Learning About Breast Cancer
    Has anyone been through breast cancer while having fibromyalgia,? and I went through three other surgeries for other things. I'm supposed to be on medication for 10 years Try to remedy X and that made me feel like a zombie. Then tried tamoxifen and am so depressed and have so much anxiety and fatigue I cannot work and I am trying to get disability. It's made me feel un-social, and depressed and fatigued continuously. Really helpless. My daughter and I have loved from place to place trying to get by until disability comes. It's been 3 years and nothing's getting better, but I have another hearing after being denied twice the first part of 2017.
    environ un mois Signal
    • Helena Petrovich Profile
      anonymous
      Learning About Breast Cancer

      So sorry you are having such a rough time. I have fibromyalgia and am having a mastectomy soon. I'm suppose to start hormone therapy after the surgery. I am definitely worried about having more bone pain and aches from the medication. 2...

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      So sorry you are having such a rough time. I have fibromyalgia and am having a mastectomy soon. I'm suppose to start hormone therapy after the surgery. I am definitely worried about having more bone pain and aches from the medication. 2 supplements that have helped with energy is Oceans Alive from Activation Products and for depression there's Sam-e. You might want to google those and see what you think.As far as my fibromyalgia pain when it's bad hydrocodone helps but I don't want to get addicted so I just use that on really bad days. Wishing you well...

      environ un mois Signal
  • Karen Fleenor Profile
    anonymous
    Learning About Breast Cancer
    I am 21/2 years out from chemo and radiation for triple negative breast cancer and I'm still suffering from brain fog and fatigue. People think I should be back to normal so it makes me crazy. Please tell me this isn't my imagination.
    6 mois commentaires Signal
  • Esther Evans Profile
    anonymous
    Learning About Breast Cancer
    I too am 3 years out. I had high dose chemo and perception. I also had radiation. I took femara for 2 years but had to stop due to side effects. I started Tamoxifen and got a huge DVT after 3 months. I am off all meds now but can relate to the extreme fatigue. I sleep a lot. Exercise 40 minutes 3 to 4 times a week and eat a well balanced healthy diet. I am still so fatigued.
    plus d'un an Signal
    • Esther Evans Profile
      anonymous
      Learning About Breast Cancer

      Herception not Perception. Sorry

      plus d'un an Signal
    • Esther Evans Profile
      anonymous
      Learning About Breast Cancer

      Perception not Perception.

      plus d'un an Signal
  • Adrienne private Profile
    anonymous
    Stage 3C Patient
    I have huge amounts of fatigue; I am only on my 7th of 28 radiation treatments. However, I have already done 6 months chemo and double mastectomy. I suspect all contribute to my fatigue. Were you fatigued from radiation before the tamoxifen? I have to take that too later- sigh.
    environ 5 ans Signal
    • Wendy Lauber Kilbourne Profile
      anonymous
      Survivor since 2009

      I definitely was fatigued from chemo and radiation and it didn't wear off for 13 months. I also had a lack of focus and confusion with it. The tamoxifen also causes fatigue, but not as bad as the chemo and radiation.

      presque 5 ans Signal

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