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If you have bilateral mastectomy, how long does it take to recover from the surgery? I hear about the tubes for drainage - how long are they kept in you? What are extenders if you have reconstruction surgery?

Ethel Brooks Profile
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anonymes

Stage 0 Patient environ 4 ans
 
  • Pam Johnson Profile
    anonymous
    Survivor since 2011
    I had bilateral mastectomies 8 months ago. Stage I invasive but very small. Genetic testing negative. Sentinel Lymph node negative. Estrogen progesterone positive. Post menopausal. Age 56. I had tissue expanders for silicone gel implants for only 3 weeks before implant exchange. Drain tubes for almost the whole 3 weeks. They are annoying but not horrible. I wore my surgical bras and loose tops. Not a huge issue, really, but was ready for them to come out! The exchange surgery was quick and not a big deal. Went to opening home game of OU football 2 days after!! Made it thru half! Taking Arimidex ...no chemo needed. Doing fantastic'nnb
    environ 3 ans Signal
    • Pam Johnson Profile
      anonymous
      Survivor since 2011

      AGAIN, if you are so ashamed of your attitude, ANONYMOUS, then just stay the heck OFF this site!!!!!!! You do not add anything to it, and the rest of us are trying to be supportive. I HIGHLY resent your reference to my decision to treat MY...

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      AGAIN, if you are so ashamed of your attitude, ANONYMOUS, then just stay the heck OFF this site!!!!!!! You do not add anything to it, and the rest of us are trying to be supportive. I HIGHLY resent your reference to my decision to treat MY breast cancer as I saw fit, and YOU HAVE NO RIGHT TO JUDGE MY DECISION, OR ANYONE ELSE'S!!!!!! You must have a pathetic life.

      presque 3 ans Signal
    • Debbie Stanley Profile
      anonymous
      Stage 2B Patient

      Were you diagnosed in both breasts?

      plus de 2 ans Signal
    • Pam Johnson Profile
      anonymous
      Survivor since 2011

      No, but after my mastectomies, when the tissue was evaluated in my non-cancer breast, pre-cancer markers were found! My doctors all agreed I had made the right decision...would have been just a matter of time until I would have had to deal with...

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      No, but after my mastectomies, when the tissue was evaluated in my non-cancer breast, pre-cancer markers were found! My doctors all agreed I had made the right decision...would have been just a matter of time until I would have had to deal with breast cancer again!

      plus de 2 ans Signal
    • sherry marsh Profile
      anonymous
      Learning About Breast Cancer

      Pam, I was just diagnosed last week with invasive ductal carcinoma. Dr wants to do lumpectomy but I am leaning to mastectomy...I have all the same markers you do. They will not do both breasts at same time because of some other health issues I...

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      Pam, I was just diagnosed last week with invasive ductal carcinoma. Dr wants to do lumpectomy but I am leaning to mastectomy...I have all the same markers you do. They will not do both breasts at same time because of some other health issues I have and also I havevery large breasts and MD says it will be big surgery. Because of family history on both sides I am leaning for bilateral...My Grandmother had cancer in one breast and then shortly later had it in the other so think I should just do both to be safe. It is still so shocking and I find I cry alot still. I am a nurse but somehow all that goes out the window when you find yourself as the patient.

      plus de 2 ans Signal
    • beth hughes Profile
      anonymous
      Learning About Breast Cancer

      Hi Pam

      I was just diagnosed with invasive stage 1 tubal ca estrogen and progestren sensative I am so conflicted on whether I should have bialteral mastectomies I am 55 yo.My genitic testing was negative also. My sister that is 50 was dx with...

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      Hi Pam

      I was just diagnosed with invasive stage 1 tubal ca estrogen and progestren sensative I am so conflicted on whether I should have bialteral mastectomies I am 55 yo.My genitic testing was negative also. My sister that is 50 was dx with invasive ductal ca 6 mo. ago she started on tamoxifin and postponed radiation for now

      How did you decide to have bilat mastectomies? I have the surgeon saying it is up to me whether to have this done and my risk goes down the medical oncologist telling me that my chances of the cancer returning does not go down with mastectomies It is difficult to decide when you get two totally different opinions

      plus de 2 ans Signal
    • Pam Johnson Profile
      anonymous
      Survivor since 2011

      Beth and Sherry, I hope you are both doing well. Sherry, I am sorry I did not see your reply when you posted 24 days ago! I know how difficult it seems to make the decision for bi-lateral or single mastectomy, but I had a very strong family...

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      Beth and Sherry, I hope you are both doing well. Sherry, I am sorry I did not see your reply when you posted 24 days ago! I know how difficult it seems to make the decision for bi-lateral or single mastectomy, but I had a very strong family history (mom, grandmother, great grandmother) despite testing negative for genetic mutations. My geneticist made sure I understood that other genes may show genetic connections, but BRCA1 and BRCA2 are the only genes currently tested. I wavered as the date got closer but had such strong family and friend support for my decision, I really felt comfortable. As it turned out, my non-cancer breast tissue showed pre-cancer markers when the tissue was examined, so my surgeon said I absolutely made the right decision. I am almost 16 months from my surgery, and feel great and worry is not a big issue--although I think we all worry no matter what our choice. But I do know I did everything I could to prevent a recurrence of BC, and have not for ONE SINGLE SECOND regretted my decision. My breast surgeon also said I had a choice...but when I point blank asked HER what she would do, she said mastectomy. My plastic surgeon also said if I were his wife or sister, he would recommend mastectomy. My daughter, sisters, best friends, all my gal pals were very supportive and relieved I chose mastectomy! My husband supported whatever I wanted to do, but if you forced him to admit it, I think he would say the same. Our son never expressed his opinion, just supported me whatever I did. I pray you each feel comfortable with your decision, whatever you choose. It will be the right decision...your decision!!!!

      plus de 2 ans Signal
    • beth hughes Profile
      anonymous
      Learning About Breast Cancer

      Hi Pam,

      Thank you so much you have helped me out so much!

      Beth

      plus de 2 ans Signal
    • Pam Johnson Profile
      anonymous
      Survivor since 2011

      Debbie, I guess I never saw your question. No, I was diagnosed in only one breast after routine annual mammogram and subsequent ultrasound then biopsy. Other breast had cells that showed pre-cancer markers when pathology was done post mastectomy....

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      Debbie, I guess I never saw your question. No, I was diagnosed in only one breast after routine annual mammogram and subsequent ultrasound then biopsy. Other breast had cells that showed pre-cancer markers when pathology was done post mastectomy. Beth, I am happy to help!!! My experience is limited, but my outcome was fantastic. Best wishes and prayers for quick recovery and healing!

      plus de 2 ans Signal
    • Linda Green Profile
      anonymous
      Patient

      I too had bilateral mastectomy in 2012 and have never looked back. 54 yrs old so currently debating reconstruction or not. Must admit its kinda nice after being heavy chested my whole life to pick the size I wanna be and take them off when I'm...

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      I too had bilateral mastectomy in 2012 and have never looked back. 54 yrs old so currently debating reconstruction or not. Must admit its kinda nice after being heavy chested my whole life to pick the size I wanna be and take them off when I'm tired of wearing them!

      plus de 2 ans Signal
  • Emily Willman Profile
    anonymous
    Stage 0 Patient
    I had a prophylactic bilateral mastectomy in May of this year (BRCA2 positive + STRONG family history). Age 40. No lymph node biopsies since this was preventative. I was out of work for a little over 6 weeks, it took about 1 week to not just be sleeping and eating on the pain meds, at about 2 weeks to feel like I was coming out of the fog, at about 4 weeks I started to feel like myself and could be out and about. I had immediate reconstruction. The drains were not a huge deal to manage, just make sure you have tops you don't have to get over your head and that are loose. I used a breast binder (per my surgeons) and safety pins to hide the drains. I didn't want to leave the house until after the drains were out (about 7-10 days in if I remember right). Also, I found the removal of the drains to be VERY painful (not a usual experience from what I am told, so I wasn't expecting it). In retrospect, I wish I had asked them to stop so I could take a pain med, let it kick in, then have the drains removed. Don't be afraid to advocate for yourself. It it hurts, make them treat the pain FIRST.
    plus d'un an Signal
    • Jean Tunnicliffe Profile
      anonymous
      Family Member or Loved One

      How are you feeling now that it is all done? I had my surgery for the same reason. I am a BRCA2 carrier, I am 45. What type of reconstruction did you have? I had bilateral dermal flap with in plants. It is taking me a bit to get used to the...

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      How are you feeling now that it is all done? I had my surgery for the same reason. I am a BRCA2 carrier, I am 45. What type of reconstruction did you have? I had bilateral dermal flap with in plants. It is taking me a bit to get used to the muscle in my breasts. Every time I open a jar or push a trolly I feel the muscle tighten and it feels weird. I count my blessings though. I agree that you have to advocate for yourself. Only you know how you feel and what is best for you and the doctors are good at listening and helping you through it all.

      plus d'un an Signal
  • Karren Williams  Profile
    anonymous
    Learning About Breast Cancer
    My surgery was 3 weeks ago. Down to one pain pill at night. Drains out week 2. Going to have my first fill of expanders next week along with appointment to discuss beginning chemo. Feeling well right now. Letting God control everything especially my thoughts which can take you to a bad place. Stay positive. Not just for yourself but for your health and love ones around you.
    plus d'un an Signal
  • Pam Johnson Profile
    anonymous
    Survivor since 2011
    I had bilateral mastectomies 8 months ago. Stage I invasive but very small. Genetic testing negative. Sentinel Lymph node negative. Estrogen progesterone positive. Post menopausal. Age 56. I had tissue expanders for silicone gel implants for only 3 weeks before implant exchange. Drain tubes for almost the whole 3 weeks. They are annoying but not horrible. I wore my surgical bras and loose tops. Not a huge issue, really, but was ready for them to come out! The exchange surgery was quick and not a big deal. Went to opening home game of OU football 2 days after!! Made it thru half! Taking Arimidex ...no chemo needed. Doing fantastic'nnb
    environ 3 ans commentaires Signal
  • Tracie Hunsberger Profile
    anonymous
    Learning About Breast Cancer
    I had a bilateral mastectomy April 2nd 2015 at the age of 39 for breast cancer. The fillers for reconstruction were put in with 200 cc's on the same date. I had 4 drainage tubes and a pain ball when I left the hospital two days after surgery. My husband took the pain ball tube out for me 3 days later. One week after surgery the plastic surgeon removed two of the four drainage tubes, and two weeks after surgery the other tubes were removed and another 100 cc's were put into the filler. I also suggest taking pain mess prior to the tubes being removed and the fillers getting filled. Today I went in for a 3 week check up to make sure I was not needing any additional fluid drained. I go back for another 100cc's next week. I am feeling much better this week and plan to go back to work a week from tomorrow which will be four weeks since surgery. I also suggest the surgical bra with drain holders.
    2 mois commentaires Signal

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