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I'm 29 recently diagnosed with IDC and the surgery option has been left up to me now and I'm struggling with the decision to have a lumpectomy or a preventative double mastectomy with full reconstruction. Suggestions?

Jessica Fisher Profile
Posée par

anonymes

Stage 3A Patient environ 8 ans
 
  • Diana Foster Payne Profile
    anonymous
    Stage 4 Patient
    Hi Jessica, I'm sorry to hear about your DCIS diagnosis. I have stage 3 IDC and can relate to what you're feeling. Have you had the BRACA testing performed? It tests to see if you carry the breast cancer gene. That would definitely help with your decision. There are many things such as if any other members of your immediate family has had cancer, etc. I have a later stage of cancer so I have decided to have a double mastectomy. But it's such a personal decision to make. There is a wonderful site called breastcancer.org. You have to be very careful about doing research online. There is a lot of misinformation out there. This is a very good site for cancer info and includes a support board with other women that have DCIS. Dr Susan Love's breast book is also very informative. Best wishes to you whatever you decide, Diana
    environ 8 ans Signal
    • Jessica Fisher Profile
      anonymous
      Stage 3A Patient

      I'm sorry I wrote that wrong I have invasive ductal carcinoma I was tested for brca and it was negative I have both maternal and paternal grandmothers who had breast cancer and my mins sister ( my aunt) my biggest concern is at 29 I have alot of...

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      I'm sorry I wrote that wrong I have invasive ductal carcinoma I was tested for brca and it was negative I have both maternal and paternal grandmothers who had breast cancer and my mins sister ( my aunt) my biggest concern is at 29 I have alot of years to go and I would hate to go through this again later in life! My children are only 6

      environ 8 ans Signal
    • Jessica Fisher Profile
      anonymous
      Stage 3A Patient

      &8 and I'm terrified of what chemo therapy will do to me and my ability to be there for them 100% they are just babies and should not have to deal with this! It's just so unfair as u know

      environ 8 ans Signal
    • Diana Foster Payne Profile
      anonymous
      Stage 4 Patient

      Hi Jessica....yes it is very unfair. So you have IDC like me. Nothing prepares you for hearing you have cancer. It's very tough and you go through so many emotions. I was diagnosed in May and have good and bad days. I try to keep a positive...

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      Hi Jessica....yes it is very unfair. So you have IDC like me. Nothing prepares you for hearing you have cancer. It's very tough and you go through so many emotions. I was diagnosed in May and have good and bad days. I try to keep a positive attitude most of the time, then there are days when I cry and feel sad. It's normal...and you should allow yourself to feel whatever you're feeling at the time. It's healthy to be able to express your emotions. As far as chemo goes...I was scared to death. I had only read about the side effects and didn't personally know anyone who had gone through it. I began with 4 dose dense of Adriamiacin/Cytoxin. And I have just completed 2 of 4 dose dense Taxol. I have 2 to go! You won't feel your best but it is doable. There are so many good drugs that can help with the side effects now. Especially the nausea. There is no reason anyone should be throwing up. If one med doesn't work for you, then another one will. They also give you nausea meds during the chemo drip. I was a little nauseous but never so bad that I felt like throwing up. The only side effect that can't be controlled is the fatigue. Take care of yourself and get a good support team. Being able to talk to other women that are walking in your shoes makes all the difference! The American cancer society will have a list of support groups in your area and the website I mentioned..breastcancer.org has a great discussion group with lots of great ladies that are willing to lend an ear. They have been where we are. I see a lot of young mothers there all the time. Just know you are not alone and you're gonna make it through this journey you've begun!

      environ 8 ans Signal
    • Becky G Profile
      anonymous
      Stage 2A Patient

      Jessica,
      Sorry you have to go through this! It's not fun to join the "pink party" but know there are so many going through it with you!!!
      I too have two rounds of Taxol left. Total of 8 rounds of chemo. 4 adriamyacin/cytoxin and 4 of taxol. ...

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      Jessica,
      Sorry you have to go through this! It's not fun to join the "pink party" but know there are so many going through it with you!!!
      I too have two rounds of Taxol left. Total of 8 rounds of chemo. 4 adriamyacin/cytoxin and 4 of taxol. The first 4 were the worst. I just had to get lots of help. But, i never threw up. The anti-nausea meds do work.
      I have three young children. 6, 4, and 22 months. They don't skip a beat!
      Reach out to those around you. Get help with meals, cleaning and child care. Just know that it won't be forever. It will just be a short moment in time! You will learn what is truly important in life. I am still learning that one and to not be too worried about how my house looks right now!
      We will kick this cancer to the curb!!!
      Hugs and prayers

      plus de 7 ans Signal
    • Debbie Stanley Profile
      anonymous
      Stage 2B Patient

      Prayers will go up for you. I was diagnosed with IDC in my left breast. Estrogen and progesterone positive. I had a double mastectomy on Oct 31 2012 for proactive reasons. W reconstruction. Expanders immediately placed. I had to have a 2nd...

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      Prayers will go up for you. I was diagnosed with IDC in my left breast. Estrogen and progesterone positive. I had a double mastectomy on Oct 31 2012 for proactive reasons. W reconstruction. Expanders immediately placed. I had to have a 2nd surgery due to a non healing side and have expander replaced but am healing good. I had a piece of mind and heart from day 1.

      presque 7 ans Signal
    • Debbie Stanley Profile
      anonymous
      Stage 2B Patient

      Ask God to give you direction and you will know when you have a full peace about your decision. Give yourself a day or so too not think about it then when you begin to think again, go with your initial instinct. Ill pray for you

      presque 7 ans Signal
  • Surf  Momma Profile
    anonymous
    Learning About Breast Cancer
    I also had the option of choosing what treatment to do. It did not sit right with me because I am not a doctor. Educate yourself in all options. Try and think of all scenarios and how you might feel with each. I choose a bilateral mastectomy with reconstruction. My surgery was just 2 weeks ago. Good luck
    environ 8 ans Signal
  • Cathy Sink Profile
    anonymous
    Learning About Breast Cancer
    I also had a double masectomy 4 weeks ago. My MRI showed 2 spots in one breast and 1 spot in other. 2 on one side were cancer and other side not. I felt like when would it be cancer so I opted for a double. I started reconstruction immediately. Expanders uncomfortable at first but every day gets better. Sometimes hard to sleep - first 3 weeks slept in recliner. Feel better knowing it is out of my body! Start chemo today. If you have a double make sure you have help first few days - my sister was a lifesaver!
    environ 8 ans commentaires Signal
  • Ana Naluh Andrade Profile
    anonymous
    Learning About Breast Cancer
    I had BC on my left breast but I decided to have double mastectomy because of the very right risk of having in the other breast later in life - the percentage is huge!! Plus, you're too young and have to have better possibilities fir your life!!!
    environ 8 ans Signal
    • Jessica Fisher Profile
      anonymous
      Stage 3A Patient

      Thank you!! Your 100% right and I will be having the double mastectomy followed by tissue expander! I'm so confident in my decision. This something I never want to go through again! I truly appreciate your incite! Xoxo

      environ 8 ans Signal
  • Thumb avatar default
    anonymous
    Learning About Breast Cancer
    I had a lumpectomy in my left breast followed by radiation. Six months later I have been diagnosed with DCIS in the right breast. I'm opting for a double mastectomy. I don't want to go through this again and removing the breasts significantly lowers the odds. I'm trying to remain positive and look at it as a boob job.
    plus de 7 ans commentaires Signal
  • Michelle Wallace Profile
    anonimamente
    Aprendendo sobre o câncer de mama
    I am 24, also diagnosed with IDC (stage 4). Due to a positive result for the BRCA gene, I have opted to do the double mastectomy. However, of you do not have the gene, I'd suggest just treating the areas that are effected. Good luck to you, love.
    plus de 7 ans commentaires Signal

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